jennyr
12 posts
Oct 08, 2008
11:42 AM
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Does anyone know what might be discovered or learned with an angiogram test? Has anyone out there had any trouble with anaesthetics? Jake is going for his 9th laser and cryo treatment on Oct.15th, he has had trouble with anaesthetics before, any helpful tips or suggestions to help with his anxiety? jenny
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Jacobs Parents
136 posts
Oct 08, 2008
7:10 PM
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Hi Jenny,
I hope you are doing OK, and we will be thinking about you and Jake next week. I imagine that your doctor is talking about a Fluorescein angiogram. They inject a dye solution into the arm, and it almost immediately goes to the blood vessels behind the eye. Your doctor will be able to get a good look at the amount and severity of leakage, if any. Take a look here: http://www.stlukeseye.com/eyeq/FluoresceinAngiogram.asp for a good description, and pictures. Perhaps some of the other parents have had a more recent experience with anesthesia. Our Jake has not been under for several years. I remember that he had a little difficulty when he woke up, maybe a little nausea, but I don't recall anything that really concerned us. You and Jake will be in our thoughts and prayers as the 15th approaches! Take care,
Dave
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cruzandfamily
27 posts
Oct 10, 2008
10:09 AM
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Hi Jenny. Bobby had his first Fluorescein Angiogram when he was diagnosed in July. He has had two surgeries since, and has another on Monday. They did another angiogram during the last surgery. Bobby was put under for all surgeries. I was told that it's less traumatic for the kids, and it also makes sure the they don't move. What kind of trouble did Jake have?
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jennyr
13 posts
Oct 10, 2008
1:53 PM
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cruzandfamily: Jake has experienced emergence delerium, when he woke up he was completely delerious and just crying uncontrollably and thrashing about. There was nothing we could do to help him, just keep him safe. Another time he woke up an was so severely nauseous, we had to stay for an extra night because he couldn't handle the long car ride home. The worst was when he couldn't breathe on his own. They didn't tell us about this until he was awake and breathing. The Drs then tested him for sleep apnea, but he is fine. The DR suggested that this might of happened because when they put him under he was so scared and fighting so much. We haven't said anything to him yet and I don't want to worry him. Any suggestions of how to calm his fears?
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Jacobs Parents
137 posts
Oct 10, 2008
3:41 PM
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Jenny,
The last time our Jake went under anesthesia, they gave him a "sleepy drink" about 30 minutes before he went into the OR. When it was time, they let me carry him back to the OR, and I laid him on the table. He had no clue where he was, or what he was doing. The anesthesiologist came in, put the mask on, and he was out. No fighting, screaming, or anything. It was easy for him, very difficult for me. He is the important one, though......You should ask about it, I wouldn't do it any other way. Take care,
Dave
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jesse's dad
28 posts
Oct 10, 2008
5:36 PM
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Jenny, Our Jesse will be going for his sixth EUA. They give him medicine about 30 minutes prior to going in. I think it is Tylenol mixed with some small dose of Valium. When he comes off the Anesthesia they give all the children Clonidine (sp) which is supposed to help with the side effects. Last time we left Philadelphia he was groggy for two hours. After he really woke up it was much easier for him. Maybe you could ask your doctor about this. Good luck
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jennyr
14 posts
Oct 17, 2008
1:42 PM
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Thank you to everyone for your suggestions. Actually we have already tried the oral medicine. He took it once but remembers the horrible taste and won't take it again. This last time we kept the enire staff waiting for 20min. while we tried to talk Jake into taking some. He ended up throwing it up right away. Jake's dad was able to carry him into the OR, he took the mask unwillingly but we got the job done. The Dr. has decided to leave Jake for 6 months, then do another angiogram. His eye doesn't appear to be getting worse. We're releaved that we don't have to keep "torturing" him for no gain, and we don't have to that 8 hour drive this winter. I think that maybe next time we will try to put the cream on his hand to numb it then use IV to administer the anesthetic. The Dr. said that Jake's situation is a real "tough" case because the exudate is travelling around in his eye and shallow. That's why he isn't a good candidate for the vitrectomy. We will continue to pray and hope for the best for Jake and all other families affected by Coats. Thanks again, Jenny
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millhorn4
12 posts
Nov 19, 2008
12:21 PM
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It has been years since my son had surgery but I think they gave him Versed (sp?) I believe this causes short term amnesia so they don't remember going into surgery or any traumatic part of it.
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