zsatara
1 post
Oct 21, 2008
10:28 AM
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my name is Tara and my 3yr
old son Devon Nixon has the coats diease first they thought it was cancer ( i was so happy it was not) but this is still something that my son and i and family have to go threw and its not easy im a single mom with three kids in texas who moved here for a cheaper living we did not no why we moved here intell the doctor tolled us my son had a diease and that he was going to be going to the best hospital in the nation (M.D. ANDERSON CANCER CENTER) they have been so great to us they show so much love and support to us. but still it can be hard on my little family since the hurrican that just hit here are insurance in not working and i have not enough money to pay for his eye drops and pain meds i have to barrow peoples cars to come to the surerys because are car wont make it that far it starting to get hareder and hareder on us today he has surgery for the third time and it has gotten bigger the doctor says that he will be in some pain today and the next few days from the frezzen they did all we ask is to keep us in your prayes threw all this thank you so much for this web sight makes me im not alone in this if you have any ideas on how or who can help us with rides to hospitals or meds im all ears thank you so much for this GOD BLESS
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karlperkins
8 posts
Oct 27, 2008
3:54 PM
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Hiya,
I do feel for you, you are not alone, there is always somebody who wil help you , trust me.I admire you.You are dealing with all of this on your own, no man to confide in and help you.You are a hero.I have got a husband who deals with all the necessary bits as I am in pieces.I dont know where would I be if there wasnt him.How can you do it on your own I dont know but you are obviously very strong woman.I wish you all the best and hope your son wont be in much pain.
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Terri,huntersmom
2 posts
Dec 06, 2008
6:58 PM
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Where in Texas do you live. I know M.D. Anderson is in Houston. Since your son has Coats and not cancer is he still being treated at MD. Anderson? I have heard Houston have some of the best eye doctors. I live in the Dallas area and my son was diagnosed a year ago in November. He has had three cryo treatments and is having a shunt put in Dec. 15.
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RachelH
1 post
Dec 08, 2008
11:03 AM
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Hi,
My 8 year old son was diagnosed with Coats' disease 4 weeks ago and we have just returned from hospital after he had his fist laser/cryo treatment. Poor little thing was in so much pain after the op, I feel so useless. I know he is going to have to go through it all again early next year and its so hard. But I would like to say that with this website its made a little easier knowing that we are not alone.
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