karlperkins
11 posts
Nov 02, 2008
8:00 AM
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Hiya,
my latest worry is that I heard that the Coat's eye does not keep on growing the same rate ( or at all) as the healthy eye and by adulthood the face will look asymetric as one eye is bigger than the other.What do you know about it and has anybody got perhaps older/adult son with Coat's in one eye who could email me a photo to see whether and how bad is it gong to be pls.?If so Dave could you give my email to relevant person pls.?Thanks.
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kymmie
3 posts
Nov 02, 2008
9:56 PM
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Hi there. My daughter is 10, would a picture of her help?
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karlperkins
15 posts
Nov 03, 2008
4:18 PM
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Hi yes of course, my son is 3!Thanks a lot!
Last Edited on 3-Nov-2008 4:18 PM
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Nanbnan
3 posts
Nov 12, 2008
3:59 PM
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My sons face (he is now 23) is not deformed AT ALL. Because his Dr was able to "save" his eye he was able to develop naturally. And by save, I don't mean his sight, I mean his actual eyeball. Like I mentioned in my post his completely blind eye tracks right along with his good eye (who knows why) so you really don't even notice there is something different at first.
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karlperkins
20 posts
Nov 13, 2008
1:42 PM
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Phew, thanks a lot fot this message!Made me feel somewhat better.
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