Hello ,..most i hear about coat's disease is that it happens to young children,YES i agree that it happens to young children but does that mean that the older you get the less chance you have of getting the disease???? I hope that the so called specialists can use some commonsence and understand that there are different stages of coat's and submit a more professionanal and thought about conclusion on coat's. I feel that they dont know enough and they just give the easy answer. "There" i feel better now that i got off my chest.
Wayne, you are funny. I agree with you, they just don't really know. I understand that in an eye doctor's career, they probably will not have a Coat's patient.
I agree with both of you. In case of my son only the Third eye doctor diagnose it is coats disease and he was also not 100 % sure about it. The reason is this is very rare disease. Probably that's the reason there is not treatment available for this.
u r right..they dont tell u anything in detail..u know our approximate wait time at the reception, when we go to see the doc is 2 hrs; our exam time is 5 minutes and after the exam he is happy... I am happy that the doc is happy with my sons eye but what does he mean by tht..but my son has tics he keeps rolling his eye to side..now im begining to think if it is tics or the coats is making his eye go like that.
I would have to say Coats is so rare that even the experts don't have all the answers. I am 47 years old and was first diagnosed at age 15 1/2. I had two bouts of laser surgury (back in 1977 and again in 1979) which went well and those areas are still okay. Unfortunately, I recently developed leaky areas around my optic nerve, ruling out laser surgury due to proximity to the nerve. I am currently undergoing Lucentis injections which have stopped the leaking and are starting to improve my eye, but progress is slow. I have a very good opthamologist (Dr. Tiedeman, Retina Care of Virginia - Fishersville, VA) who knew exactly what course of action to take, but from what I understand from him is that Coats acts much like Wet Macular Degeneration, and the Lucentis and other intravitreous eye drugs have only been in use for about four years. I believe the doctors know very little about what causes Coats, but they are able to effectively treat lesions in the periphery and some retinal detatchment if it is not too far gone. The tricky part is when Coats pops up near the optic nerve. Drug therapy is all you have at that point. I don't know how long the Lucentis will work... I just had injection three and my doctor does his in a series of three and then does a retina mapping and takes photos to compare progress. I believe there will be three or four cycles of this. From what I can tell, it depends on how well the eye reacts to the Lucentis being the determining factor in how long or how many injections will be performed. I have had some improvement (vitreous fluid cleared up and can see a little more on eye chart, but still fuzzy), however, the doctor wanted to see more improvement from the first two injections.
I will update the progress next month as he will be taking photos and a retina mapping in September.
I hope you all have success in each of your endeavors!
