jjmullins
14 posts
May 27, 2009
2:30 PM
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hello all i'm looking fo rsomeone out there that has coats' in both eyes or someone who know of any one that does.
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presca
40 posts
Jun 03, 2009
3:48 AM
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Hello
I havenot heard yet about the coats in both eyes. Normally it happens in one eye. Just the thought of coats in both eyes is so scary. May God save the healthy eye of all the children who is surving with coats in one eye.
Presca
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presca
41 posts
Jun 03, 2009
3:49 AM
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Hello
I havenot heard yet about the coats in both eyes. Normally it happens in one eye. Just the thought of coats in both eyes is so scary. May God save the healthy eye of all the children who is surving with coats in one eye.
Presca
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jjmullins
15 posts
Jun 03, 2009
7:30 AM
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his left eye is ok for now but they say it could go at anytime. it scares us to death too.
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presca
42 posts
Jun 04, 2009
4:06 AM
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I am sorry if I missed your earlier messages. Could you please share how old is he? My son is three years old and he has coats in his right eye. His doctor says it normally happens in only one eye.
I am surprised to see your message. What is the reason that his good eye can go at anytime?
Presca
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jjmullins
17 posts
Jun 04, 2009
6:38 AM
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my son is 7 almost 8 they say that it can go just like the right one. or it could never go they don't know.
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Jacobs Parents
211 posts
Jun 04, 2009
10:03 AM
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presca,
I believe I read somewhere that between 8 and 10% of Coats' cases are bilateral. There are several case histories online, and Jerry is not the first we have heard from here. If Coats' disease is present in both eyes, one is significantly worse than the other. The second eye may be affected years later, which is why both eyes need to be checked on a regular basis. We go every 6 months to have both eyes examined.
Dave
Last Edited on 4-Jun-2009 10:03 AM
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jjmullins
18 posts
Jun 04, 2009
2:39 PM
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he just went last week and no change in the left we go back in 6 weeks
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Jacobs Parents
212 posts
Jun 06, 2009
2:11 PM
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Just wanted to clarify something. We have no reason to believe that Jacob's Coats' Disease is bilateral. We have him checked every 6 months by his retinal surgeon, and the alternating 6 months for his non-Coats' eye. He is colorblind in his non-Coats' eye, and also has a prescription for an astigmatism.
Dave
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presca
45 posts
Jun 12, 2009
4:08 AM
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Hi Dave,
Can I know what is astigmatism?
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Jacobs Parents
215 posts
Jun 12, 2009
7:21 AM
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presca,
It is a condition caused by an irregularly shaped cornea or lens. I have seen estimates that say that up to 28% of children may have this condition.
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Dennis18
1 post
Aug 14, 2009
5:40 PM
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I was diagnosed with Coats in both eyes at age 7. The disease had progressed rapidly in my right eye and laser surgery was able to stop any further progression, but I have limited vision in that eye. I am now 17 and there has been no change in the status of my left eye. I go every six months for checkups for both eyes.
Last Edited on 14-Aug-2009 5:41 PM
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Mandapanda123
9 posts
Aug 31, 2009
4:14 PM
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My daughter has it in both eyes but the right eye is worse than the left they keep freezing the left on more than the right because they think they are going have to remove her left eye
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spk70
1 post
Sep 01, 2009
3:57 AM
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I was diagnosed with Coats in both eyes when I was 4 years old after accidentally hitting my right eye. The disease had attacked my right eye first and it was completely destroyed. The doctors were able to save my left eye with laser surgery. I'm now 39 years old and my vision is now 20/10. I'm very very lucky. If I hadn't hit my eye when I was 4, I would be completely blind.
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everettmlk
11 posts
Sep 02, 2009
12:11 PM
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My son has bilateral Coats. Left eye was diagnosed in 2000, followed by cryo & laser surgeries. Activity in right eye began in 2007. Luckily we'd been going to 6 month check-ups and my son was old enough to verbalize changes he was seeing (new blind spot, flashes). Doctor performed cryo, laser and Avastin shots. Although he still has scarring in central vision, he functions at a very high level - plays sports, guitar, hiking.
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