roro02
1 post
Feb 27, 2010
7:46 PM
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My son Michael (7 yrs. old) was diagnosed with Coats on January 20,2010, we had no idea what coats was. My son had Cryotherapy a few weeks ago and we went for our follow up and he will need surgery again in April. He has been wearing glasses for the past few weeks and has adjusted very well to them. He is a very active child that plays hockey, soccer, baseball and swims. For all his sports activites he is wearing the rec spec. I wanted to thank Jacob's parents for this very imformative website. It helped my husband and I very much. I had a very hard time at first and thought how could this be happening to him. We saw four doctors in our area and then was referred to Dr. Mina Chung in Rochester, NY. She was so wonderful with Michael and with us. I went in there asking a ton of questions I read from this website and she answered all of them. So again thank you.
Last Edited on 27-Feb-2010 8:09 PM
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Jacobs Parents
252 posts
Feb 28, 2010
8:08 AM
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roro02,
We are glad that you were able to find answers to some of your questions on our site. We are also glad that you got the chance to see Dr. Chung. She is still Jacob's specialist, and he refuses to see anyone else. She is the reason Jacob still has his Coats' eye. Everyone else thought we should have it removed. We will always be grateful for her. Good luck to you and Michael in the future.
Take care,
Dave
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roro02
4 posts
Feb 28, 2010
3:42 PM
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Thank you very much and we wish the same for Jacob. He is in our prayers.
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lynsey_baxter
1 post
Mar 07, 2010
3:06 AM
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Hi, my son was diagnosed with coats disease 3 weeks ago. Roro02 i have just read your article and seen that your son has been prescribed glasses.
We have been told that my son wouldn't benefit from glasses. He can only see approx 2/3 ft in his right eye.
I just feel abit isolated with all of this as no one i know knows anything about it.
I am currently running a campaign, i've had a3 posters printed by a local printing company to make parents aware of this as i only knew something was wrong having read an article in the sun newspaper at the back end of last year.
My son is being treated by Mr Tiffin at Sunderland Eye Infirmary.
If you are on facebook, please go to my site red eye white eye (coats disease) to help raise awareness to this!
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firemom
25 posts
Mar 07, 2010
5:41 AM
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Lynsey_baxter
My son also wears glasses that do not benefit his vision as most of his eyesite is gone in the coats eye. But the glasses are to protect his good eye from any injury or something getting in to it as he only has "one" eye to use now. You can get poly carbonate glasses with no perscription in them. Hope this helps.
Keith's Mom
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roro02
5 posts
Mar 07, 2010
10:40 AM
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lynsey_baxter
My son was perscribed glasses to protect the good eye, the second doctor we saw said he did not need them. Once we saw the 4th doctor he said Michael had some focusing issues but he said he still would have perscribed them to protect the other eye. Michael has perscription goggles for swimming he has been wearing them for the past week and he said they work better then his non-perscription goggles.
I wish you and your son all the best and my prayers are with your family.
Last Edited on 7-Mar-2010 10:40 AM
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